Zayna

Hi, My name is Zayna and I am 22 years of age. Just about 6 months ago or so I have been seeing double. I have no other symptoms other than headaches and feeling tired all the time, which I think are all a result of each other. I really didn’t think much of it and never approached the issue.

I went to the optometrist for a regular check up and she is the one who first noticed the double vision, I then went to an optometrist who then sent me to neuro-optometrist and who is now working hand in hand with a neurologist. They have all said this is an “odd” case or a “different case” because of the double vision test results. It is now apparent that the double vision gets worse when I am tired, stress, and because of the “ice test” it is better when ice is put on my eyes.

After noticing this, my neuro ophthalmologist brought up myasthenia gravis. I was only told that we were going to run a few test and that I would be working with her and the neurologist. Everything I know today about Ocular MG and MG is from all the research I have done. I saw the neurologist a few days ago and since then I have been taking Mestinon (1/2 60mg 3′xs a day), I have got my blood tested and I have a cat scan on Tuesday.

In the three days that I have taken the medication I have had no side effects and no effect or improvements what so ever. What makes me question the diagnosis???? Hopefully by my next appointment with all the test results been looked at (MRI, CAT, Blood, and mestinon results) the doctors will have a more clear answers for me or possible diagnosis. It has been really hard reading everything on MG and dealing with it emotionally. It is a lot to take in, which is why the doctors probably didn’t tell me much about it to begin with.

I don’t regret it because I am a strong believer in using knowledge to your benefit. The last thing I wanted was to be blindsided by a diagnosis. I have so many questions about whether I seem like a typical case of OMG. If there are people out there that feel just the same way that I do? What to expect for the future? The most important thing I need to know is what is it that I can do?

I am not the person that is going to wait for the answers to fall in my lap. This is my life and my responsibility to take control of it. When I came across the group’s website I thought to myself…”wow, this is great!) I would love to join and give and get feedback. I can’t wait to hear back from the group. I think connecting with someone who has firsthand experience would be a real honor.

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